Senior Director, Global Patient Advocacy Lead

Location: United States - Boston preferred, or able to spend significant time in Boston; hybrid with regular domestic and international travel

Reporting to: Chief Operating Officer

About Hemab

Hemab is building preventative treatments for serious, underserved bleeding disorders. These are therapies designed to work with the bodys own biology and stop bleeds before they start, instead of treating them after they happen. Were patient-first, science-led and clinical-stage - with a pipeline that takes different scientific approaches to different patient needs.

We went public via our 2026 IPO, and were scaling across two homes: Cambridge, MA, USA, and Copenhagen, Denmark.

The role

Patients need a meaningful voice in how medicines are developed and how care changes around them. As Senior Director, Global Patient Advocacy Lead, youll set Hemabs patient advocacy strategy, with a major near-term focus on building our presence, partnerships and understanding of patient communities in the US. Across Glanzmann Thrombasthenia, von Willebrand Disease and, increasingly, heavy menstrual bleeding, youll build trusted partnerships where strong communities already exist and help create connections and infrastructure where they dont.

Our work starts with patients who have spent too long reacting to bleeds rather than having the chance to prevent them. Patient advocacy at Hemab isnt separate from the science - it helps us understand what patients need and what meaningful progress looks like.

What youll do

• Set Hemabs patient advocacy strategy, with the US as a major focus, deciding where and how we invest to make the greatest difference for the communities we work with.
• Build Hemabs relationships with US patient organizations, patients, families and community leaders, while developing partnerships internationally as our programs require.
• Build advocacy infrastructure where focused patient organizations dont yet exist, convening communities and supporting emerging groups without speaking on their behalf.
• Build Hemabs approach to patient advocacy in heavy menstrual bleeding, particularly in the US, helping an under-recognized community become better connected, heard and understood.Design and lead patient advisory boards, turning what you hear into useful input for development strategies and decisions.
• Bring patient perspectives directly into Asset Teams and partner with clinical and go-to-market colleagues on patient-facing materials and trial engagement.
• Gather and steward patient stories ethically, with clear consent, dignity and control over how each persons experience is shared.
• Build representation into our approach so underserved and geographically dispersed patients have meaningful opportunities to contribute.

What youll bring to Hemab

• Significant senior-level experience in patient advocacy, community engagement or patient-focused strategy, with evidence that youve shaped strategy as well as delivered it.
• A track record of building credible, durable relationships with patient organizations and communities.
• Experience building patient communities or advocacy infrastructure from the ground up, particularly in the US healthcare and patient advocacy environment.
• Experience creating and leading patient advisory boards and translating patient insight into action.
• Strong knowledge of ethical patient engagement and storytelling, including consent, dignity and appropriate boundaries.
• Experience partnering across clinical development and other functions to bring patient perspectives into decisions.
• Willingness to travel regularly, including internationally and occasionally for evening or weekend community events.

Nice to have

• Experience in bleeding disorders, rare disease, heavy menstrual bleeding or womens health.
• Experience in a scaling biotech and across late-stage development, approval and launch.

What to expect, honestly

Hemab is still building a lot of its own structure. Systems here tend to get created as we need them, not handed down in advance. Whoever takes this role will likely build some of their own process instead of inheriting a finished one. We work across two hubs and multiple time zones - bridging that well takes real, deliberate effort. And because were growing quickly, priorities can shift with less notice than they would at a larger, more established company.

This is the actual shape of working somewhere at this stage: Its genuinely energising for the right person and genuinely frustrating for the wrong one. If you want a place where the operating manual is already written, this might not be it - but if you want to help write it, this might be exactly it.

Why Hemab

At Hemab, your work ultimately connects back to something simple. People living with serious bleeding disorders get something theyve never had before - the chance to prevent a bleed, instead of reacting to one after it happens. Youll be joining at a stage where individual decisions still carry real weight, and where your work can help turn promising science into a preventative treatment that actually reaches patients.

How we treat our people is meant to be an extension of how we think about patients: with care, honesty, and respect. Were still building the consistency to back that up across every hiring process, every time. Wed say that plainly instead of pretending otherwise. If any part of your experience with us falls short of it, tell us.

Hemab builds balanced candidate slates and assesses everyone against a single standard. If you need a reasonable adjustment at any stage of the hiring process, please tell us.

Equal Employment Opportunity

Hemab Therapeutics is proud to be an equal opportunity employer, seeking to create a welcoming and diverse environment. All applicants will receive consideration for employment without regard to race, color, religion, creed, gender, national origin, age, disability, veteran status, pregnancy, sex, marital status, gender expression or identity, genetic information, sexual orientation, citizenship, or any other legally protected class.